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The Mikaere Foundation

The Mikaere Foundation supports children and families living with Nonketotic Hyperglycinemia (NKH) - a rare and terminal metabolic disorder.

mikaerefoundation.org Fundraise for us
hello@mikaerefoundation.org

Registered charity no. 1200720

Member since July 2024

About us

The Mikaere Foundation supports children and families living with Nonketotic Hyperglycinemia (NKH) - a rare and terminal metabolic disorder. 1 in 3 children born with NKH will die before their first birthday, and for those that survive their first year, the average age of death is between 4-8 years, often with severe disability. Children born with NKH deserve a future, and a life without pain, seizures and dystonia. Currently, there is no cure. We hope to change that.

We've partnered with researchers at UCL to advance the knowledge of NKH and to bring about effective treatment options. We also provide support to children and families living with NKH. It’s not an easy path, and because of the rarity of NKH, information and help can be difficult to come by.