Invest in ME Research

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS) and promoting better education about ME. Invest in ME Research is run by volunteers - patients or parents of children with ME - with no paid staff and overheads are kept to a minimum.

www.investinme.org Fundraise for us

info@investinme.org

02380 643736 / 07759 349743

Registered charity no. 1153730

Member since February 2018

Latest News

Anne Örtegren - A Year On

A year after her passing the charity remembersour Swedish friend and supporter - and the influence of - Anne Örtegren.

Reas more- http://investinme.org/AnneOrtegren2019.shtml

Invest in ME Research has arranged an inaugural meeting of leading European clinicians who are involved in treating people with Myalgic Encephalomyelitis.

Invest in ME Research Input to Parliamentary Debate on Research into ME

The charity submitted input to the recent debate in parliament and the charity had several references by MPs to the work it was doing

About us

We are a small charity but with supporters who have big hearts - and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.

The charity's objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.

The charity believes that biomedical research into ME is crucial in order to make progress in treating this disease. We also believe that education of healthcare staff, the media, government departments, patient groups and patients is to be a priority.

We have links nationwide and also internationally.

Invest in ME Research is a founder member of the European ME Alliance (EMEA), a collaboration of European national charities and organisations.

The charity was also responsible for initiating the European ME Research Group (EMERG) concept, a collaboration of European researchers from major institutes.

Recently, the charity was has initiated the European ME Clinicians Council (EMECC), a network of European clinicians who will work together and share experiences of treating ME in order to establish better standards for patient care.

We do not receive, and have never received funding from government or government organisations.

We believe that we need a national strategy of biomedical research into ME to produce treatments and cures for this illness.

We have always believed that the seriousness of the situation regarding ME makes it necessary for governments to provide "ring-fenced" funding for biomedical research in to ME (as was provided for HIV/AIDS) in order to address the need for development of diagnostic tests and remedial treatments.

However, the charity does not believe in merely asking for funding - the charity has pursued of policy of raising funds itself for biomedical research in order to fund research at top UK institutes. More information is available here.

The charity organises an annual research Colloquium and conference regularly attracting delegates from over 15 countries and funds research at Quadram Institute Bioscience/University of East Anglia and University College London as well as influencing collaboration elsewhere, in UK, Europe and beyond.

Our conferences and colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME.

In order to bring the best education and research to bear on ME and to find and facilitate the best strategy of research into this disease the charity welcomes support for our work.

Our aim is to fund and facilitate research in order to establish an understanding of the aetiology, pathogenesis and epidemiology of ME. We hope this will lead to the development of a universal diagnostic test(s) that can confirm the presence of ME and, subsequently, medical treatments to cure or alleviate the effects of the illness

Our efforts are focused on setting up a UK/European Centre of Excellence for ME which will provide proper examinations and diagnosis for ME patients and a coordinated strategy of biomedical research into ME in order to find treatment(s) and cure(s).