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Endometriosis South Coast

Endometriosis South Coast is a patient-led, community-driven organisation dedicated to improving the lives of people affected by endometriosis across the South Coast of England. We exist because too many individuals are dismissed, misdiagnosed, left in pain, or excluded from care. Our work bridges the gap between lived experience, research evidence, and practical support.

www.endometriosissouthcoast.com Fundraise for us
admin@endometriosissouthcoast.com

02394217090

Registered charity no. 1186203

Member since November 2022

About us

What We Do 1. Direct Support for People with Endometriosis

We provide:

Peer support groups (in-person and virtual)

Safe, inclusive spaces for gender-diverse individuals with endometriosis

Educational workshops on symptom management, navigating diagnosis, and treatment options

Signposting to specialist services, clinicians, and mental health support

Advocacy guidance for workplace and academic accommodations

Our approach is trauma-informed, research-informed, and rooted in lived experience.

  1. Education & Awareness

We deliver:

Community awareness events

Workplace education sessions

School and university talks

Myth-busting campaigns

Evidence-based digital resources

We work to reduce stigma, shorten diagnostic delay, and improve understanding of the complexity of endometriosis — including its impact on physical health, mental health, careers, and quality of life.

  1. Research & Advocacy

We actively contribute to and amplify research that centres:

Health-related quality of life

Ethnic and racial disparities

Gender-diverse experiences of endometriosis

Barriers within healthcare systems

We advocate for inclusive definitions, equitable care pathways, and improved clinician training. Our work ensures patient voices shape conversations about policy and practice.

Where We Work

We primarily serve communities across the South Coast of England, including:

Hampshire

West Sussex

Dorset

Surrounding coastal areas

However, our digital resources and online support groups extend our reach nationally.

How Your Donation Makes a Difference

Every contribution directly strengthens support, education, and advocacy for people living with endometriosis.

£25 funds educational materials for one community awareness event.

£50 covers refreshments and safe-space materials for a peer support group.

£100 funds a specialist-led educational workshop for patients.

£250 supports the delivery of an inclusive awareness session within a workplace or school.

£500 helps us run a full month of community-based support activities.

Your support enables earlier conversations, better-informed patients, and stronger advocacy for systemic change.

Our Commitment

We are committed to:

Inclusivity — recognising that endometriosis affects women and gender-diverse individuals

Evidence-based information

Ethical advocacy

Community-centred support

Challenging inequity in care

Endometriosis South Coast is more than a support group. It is a platform for change — locally rooted, nationally relevant, and driven by the voices of those too often unheard.