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Cystic Fibrosis Trust

The Cystic Fibrosis Trust fund cutting-edge research into new treatments, provide support services to people and families affected by CF, work closely with the clinical community to improve the quality of care, and campaign for equal access to the latest treatments.

www.cysticfibrosis.org.uk/

Charity

Registered charity no. 1079049

Member since April 2018

About us

The Cystic Fibrosis Trust is the only UK wide organisation supporting people and families affected by cystic fibrosis.

Cystic fibrosis is the UK’s most common genetic condition. It affects 10,500 people across the UK, approximately half of whom are aged 19 or under. Last year, half of those who lost their life to CF were 32 or younger.

The life-limiting condition is caused by a faulty gene known as ‘CFTR’, which causes the build-up of thick sticky mucus in the lungs, digestive system and other organs and leads to a wide range of challenging symptoms affecting the entire body. Over time it destroys the lungs to the point where the only chance of survival is a lung transplant. There is no cure for CF, and each week two people die from, and five babies are born with the condition.

The Cystic Fibrosis Trust fund cutting-edge research into new treatments, provide support services to people and families affected by CF, work closely with the clinical community to improve the quality of care, and campaign for equal access to the latest treatments.

Our mission is to create a world where being born with CF no longer means a lifelong burden of care and an early death. Our vision is a ‘life unlimited’, when one day everyone with CF will be able to live a long, healthy life.