About us
The Tuberous Sclerosis Association (TSA) is the only UK charity dedicated to supporting and representing people living with Tuberous Sclerosis Complex (TSC). The TSA was launched in 1977 with a membership of 50 families and funds of just £25. We have grown from a round robin support letter to a professional organisation providing support to families affected by Tuberous Sclerosis Complex (TSC) across the UK.
Our small professional team come from a wide-range of different disciplines, including medical, social care, advocacy, and research backgrounds. These different experiences help the TSA team to drive forward improvements in the lives of people affected by TSC. The TSA is here for everyone in the TSC community, including individuals living with the condition, families and entire communities. We help through: Support for the community: We support individuals and families affected by TSC, through our dedicated support team, up-to date information and annual flagship events
Research: We fund world-class research into the causes, management and treatment of TSC
Campaigns: We work to influence NHS policy to ensure that people affected by TSC get the treatment and care that they deserve
Support for professionals: We expand the knowledge and expertise of health, social care and education professionals who help people affected by TSC.