Happy 7th Birthday - Rare Dementia Support
Funded by The National Brain Appeal, support groups led by UCL for people with different types of dementia came together to create ‘Rare Dementia Support’.
Today, RDS is proud to support seven different types of rare or unusual forms of dementia:
Posterior cortical atrophy (PCA)
Primary progressive aphasia (PPA)
Familial Alzheimer’s disease (FAD)
Frontotemporal dementia (FTD)
Familial frontotemporal dementia (fFTD)
Lewy body dementia (LBD)
Young-onset Alzheimer’s disease (YOAD)
In our seventh year, we are delighted to announce that we will be showcasing the ‘Rare Space’ Sanctuary Garden at the RHS Chelsea Flower Show 2023. https://www.nationalbrainappeal.org/chelsea-blog-jan/
Rare Dementia Support came together seven years ago on #RareDiseaseDay. Having a “rare” dementia brings additional challenges for individuals and familiars – including a lack of disease understanding or support. Today, on Rare Disease Day, we come together to recognise over 6,000 conditions affecting 5% of the world’s population.
Rare Disease Day is an opportunity to remind ourselves that not all dementias are the same - and some are relatively rare.
If you know someone with a young onset, inherited or unusual dementia, Rare Dementia Support can provide information and help.
🎉 It's giveaway time 🎁 - Chelsea Flower Show 2023 tickets!
To celebrate our upcoming 'Rare Space' Sanctuary Garden, we're holding a special prize draw giveaway and the chance for you to get two FREE tickets to this year's Chelsea Flower Show!
Don't miss out on this amazing opportunity. Sign up at https://www.nationalbrainappeal.org/chelsea-tickets
Know someone who would love to be there? Tag them in the comments below and share this post. Good luck 🤞
Brain Tumour Awareness Month
With brain tumour research at a critical point, discovering new treatments and research has never been more important. Over the last 10 years, we have made a significant impact in the battle against brain cancer providing close to £3million (£2,980,000) and funding a number of developments including the brain tumour unit, the Molly Lane Fox Unit, the IPI-GLIO immunotherapy trial and research projects with a focus on developing surgical treatments and techniques. All actions establishing The National Hospital as a world-leading centre for brain cancer.
This Brain Tumour Awareness Month, join us in spreading awareness by sharing how the work of #QueenSquare has made a difference in your life and if you can, a donation to our Brain Cancer Research appeal would help us fund new treatments and research into brain cancers. Thank you https://www.nationalbrainappeal.org/what-we-do/current-appeals/brain-cancer/