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The Ehlers-Danlos Support UK

Ehlers-Danlos Support UK is the UK's only charity supporting people with any type of Ehlers-Danlos syndrome (EDS). EDS is a group of genetic connective tissue disorders which have wide-spread and often debilitating symptoms. One type of EDS is life-threatening. The charity provides vital support and information and strives to educate the medical community to improve accurate diagnosis and treatment.

ehlers-danlos.org Fundraise for us


Registered charity no. 1157027

Member since March 2018

About us